Ok, I'm going to start this off by saying sorry for being MIA the past few weeks. I've been hyper focused on rehab, as well as things on the writing front, so most of my energy has been going toward those and everything else has basically fallen a) out of my head or 2) off my radar.
As it is, I am sick this week and all hopped up on DayQuil, so there is no certainty this post will be any form of informative but—hey!—it's not like that's stopped me before amIright?!
I think I left last blog saying we were going to try me with some walking to change things up and see how I did because I was progressing surprisingly well; my symptoms have been extremely consistent over the course of the 9 weeks so my PT felt hopeful about it. And, it was a little rough, but I have been able to transition to most, if not all, rehab on the treadmill. Times have changed and shortened from what they were on the recumbent bike, of course. But it is nice to be up and moving. Typically, the program has the patient go from recumbent bike (or swimming, or rowing) to stationary bike, to walking. My PT feel that because I put myself through some intense exercise 5 years ago (*NOT* recommended, by the way), I was able to help with some of my reconditioning, which has allowed me to respond so positively to this program.
Most of the people within the POTS group at the center have had the condition for a few years. I seem to be the "veteran" of the group at being officially diagnosed in 2007. Everyone moves at their own speed and what their bodies can handle; a girl who was in the program before I got there is still kicking ass on the recumbent bike. I wondered if my having the condition longer was attributable to my response to the program, but my PT said it's usually the opposite. Usually the longer one has it, the more deconditioned they become. But she went on to say how there is really no "step-by-step" way with POTS; it's such an individual condition that affects everyone so differently. Which is one of the reasons it makes it such a pain in fricking the ass to treat (I might've said that last part).
I guess I have been worried to share my progress because I do not want to imply this will happen to everyone. Nor do I want anyone to compare their progression with mine, just a I try not to compare my progression with anyone else's (there are POTS patients running marathons! I think they might secretly be sorcerers). I think it's probably a very human thing to do, though—I mean, I'm proud of where I am but there's also that part of me that's like, "Wow. How did they get to running... a mile... and then... 26 of them... in a ROW?!"
But maybe that's the thing right there, we just have to make sure we're still proud of where we are. Whether it's trying to sit up in bed without passing out, taking a shower without getting the crap kicked out of us for the next five days, recumbent biking for 3 minutes, not puking for 24 hours, walk-crawling, or running for just 10 more seconds because—shit—we sure as hell have fought to get wherever we are, that's for damn sure.
Anyhoo, I've taken a few days off of rehab due to my cold and, since I can decondition like a MF, that means I'll be in a different spot when I'm able get back on the horse. I'll let y'all know how that goes as this has been something I've been worried about ever since I start the program. Either way, I'll have more knowledge of what to do next time the universe thinks it's funny to give me a cold, and my period, on top of a myriad of chronic illnesses.
In the meantime, y'all kick ass and are some of the strongest people I know. Love, S